So our school year started of a little differently than we planned. Monday night Nick and I were getting lunches ready at about 10pm because school started on Tuesday. I heard Vince on the monitor and it sounded like he was getting restless so I went up to check on him. When I went into his room I saw that he was having a seizure and I called for Nick quickly. We called 911 and soon they arrived. His seizure lasted about 7 minutes and he was out of it for a little while. He finally really responded to the paramedics when they put the oxygen on him and started to cry. They were very happy he was crying and we were too. They transported us to Bronson hospital and we hung out in the Emergency Room until about 2:30 in the morning. They did a lot of blood work and found that he did not have an infection that caused it nor did he have a fever or anything else that would have caused it. The reason they believe he had it, and his neurologist told us it could happen, is because he still has blood stains in his brain from when he was 3 weeks old and had bleeding in his brain after shunt surgery. We were told that the blood went away a long time ago, but the blood stains will be there for a long time if not forever. Blood is an irritant and can cause seizures. Sometimes a growth spurt can cause it to act up and I am sure there are more things that can as well. At the ER they decided to put him in a new anti-seizure medication, Keppra, and we will be continuing that. He seems to be doing well with it, he has been a little bit wobbly, but tonight he was even doing much better walking. It says on the medication that it can make them dizzy, so that might be what is going on, or he is still worn out from the whole ordeal. We are going in to see the neurologist on Sept. 27th and will be having and EEG first that day. I think we will have a better idea of what the long term plan is at that point. I hope at some point we are able to get off of the anti-seizure medicine, but right now we are just hoping to be seizure free for a while. All three of us stayed home on Tuesday and I missed the first day of school, but my students did so well. I think I lucked out this semester with some great students.
On a positive note, we got Vince a Cars potty a little while ago and he has been going potty on it at night before we get into the bath tub. We still don't know how much feeling he has in that area, but he is able to push some poop out. :) Tonight he actually asked to go potty on the toilet before we had gone up stairs, so he really seems to like it.
We will keep you all posted on how things are going, but for now everything has settled down and we are all doing well.
Love,
Nick, Andrea, and Vince
