Meeting Cousins

Here are a couple of pictures of Vince meeting Nicks cousin's kids (Bellmore side) this week. He was so good while we were there. He was awake the whole time and was not fussy at all. He was a little fussy that night because he had not taken a nap but that is ok. It was a very busy week as stated before, and it looks like it is going to be another busy one coming up.

Love

Nick, Andrea, and Vince

Busy Week - Part 2

Well, we made it though last week and all of Vince's appointments. He started physical therapy last week in Lansing and we have to go twice a week for a while. The therapist said that he has full range of motion but his muscle tone is a little weak for his age, so we have some exercises to do with him at home to get those muscles built up. We are starting to see small improvements, so that is good and we will go back on Thursday and Friday this week to work with the therapist.

Yesterday we went to his first SB clinic in Lansing. That is where SB patients go to the office and six different doctors go from room to room and check them out. We met with a neurologist, pediatrician, urologist, dietician, physical therapist and the nurse so it is a long day (4 hours) of sitting in a little room talking with doctors. At the end of the session, the doctors all get together and discuss the patients and write up reports of their findings. They are going to mail out the report to us, so we don't know yet exactly what they thought, but we don't think they found anything new. He will probably have to go back every 3 -4 months to the clinic for checkups. We will have a follow-up appointment with the urologist soon for an ultrasound on his kidneys and a test to determine his level of bladder function. They want to see where he is at now and then monitor him ever few months to see how those areas are functioning. Vince did really good, he was awake and alert for most of the morning.

He has been sleeping very good at night lately which means we have been sleeping a lot more at night as well. Hopefully I didn't just jinx it. The last few nights he's slept for 4-5 hours at a time, wakes up to eat, and goes right back to sleep. And then last night, he went down at 11pm and didn't wake up until 7:30 this morning!

Today we're going to a pool party at Uncle Paul and Aunt Kathy's house to hang out with a bunch of cousins. Should be a good time.

Nick, Andrea, and Vince.

Busy Week

We have a very busy week this week. Today we went to the Neurologist for a checkup after last week’s events. Everything went well, she said he was doing everything a baby should be doing. She was also impressed with how well he moves his feet. Tomorrow we are going to physical therapy for his initial evaluation. We think everything will go well based off of what everyone has said so far, and on Thursday we are going to the doctor to start his shots. He has started to sleep a little better at night, he still wakes up about every three hours but he goes back to sleep after he is done eating which means we get to go back to sleep. I am including a few pictures from the 4th, his one month birthday. We wanted to take a picture of our little family and we decided to see if any of his nice close fit, well they did not and he was not very happy about trying them on. On another note, congratulations to David and Luke on graduation.

Love,

Nick, Andrea, and Vince

Back Home Again

Vince got discharged from the hospital on Monday as scheduled, so we have been back home for the past few days. He is doing really good. He is so much more alert and content since we got back home, so something must really have been bothering him before and hopefully it is all fixed. He's on siezure medication now and will be for at least a month until we go back for follow up tests to determine if he can be taken off of it.

We were shocked when he slept for almost 6 hours Monday night so the two of us got a lot of uninterrupted sleep for a change. That excitement was short-lived though as he was up most of the night last night. We'll see how it goes again tonight.

We've got a busy couple of weeks ahead of us. Vince had an appointment today with his pediatrician, then next week he goes back to Kalamazoo to follow up with the neurologist on Monday, our first physical therapy appointment on Tuesday, and then another appointment with the pediatrician on Thursday to start his first round of immunizations. Hopefully he can get into some sort of sleep schedule because we are going to need our rest.

Now that all of his stitches are out and umbillical cord fell off finally, we were able to give Vince his first real bath on Monday. He did really well with it surprisingly, hopefully that keeps up.

Nick, Andrea, and Vince