Hanging out in Colorado
Our only picture all together in Colorado, we were in Vail, just about to head to the airport.
He had this muffin in Colorado and thought it was the best thing ever.
So tired
Ready for a boat ride
Enjoying the Lake with Dad
One Year photo's
He was not too sure about this bear
So Vince has been doing some great things lately. We have had so many first in the last couple of weeks it is amazing. I will go back a little ways though.
In May Vince's Neurologist decided to take him off of phenobarb because he had not had a seizure since right after his first shunt surgery, his EEG came back normal, and the blood that was in his brain looks like it has dissolved. We did it very slowly. He was on 6 mL a day and we took 1 mL away each week, so it took 5 weeks. We did not notice anything that different with him at first but as we got lower and lower we started to notice that he was waking up screaming and after a couple of doctors appointments it was decided that he was going though withdrawals. I don't think either of us realized how strong the stuff really was. We had been told by a few people that sometimes when kids come off of the medicine they can do new things and Vince happened to be one of those. Two days after he was off of it he started to stand. At first it was very short but as the summer has gone on he has gotten stronger and stronger and now can do it for a couple of minutes at a time. He loves it to, he gets the biggest smile and is so excited when we stand. We do it a lot during the day and he even points to the couch to stand at this point.
This summer Vince has gotten a lot of teeth. He now has nine and a few more are very close. He got three of his teeth all in one day, numbers 7, 8, and 9. He had a little bit of a hard time with it but not too bad.
Vince has also started pivoting on his tummy and scooting back a little bit. Today he even started wiggle on his tummy and tried to go forward, so I think crawling is in our near future. We are very excited. It is like all of the sudden he has had this explosion of movement.
Vince also got AFO's last week. They are ankle and foot orthotics. When Vince stands he has weak ankles and needs a little help building the correct muscles. I have not taken any pictures of him in them yet, but I will soon. He does not seem to mind them and he can stand even better in them which he loves.
He is also developed quite the personality. He is so goofy and silly. He also lets you know when things are not going as he wants. We have even witnessed his first tantrum. While skyping with Nick he really wanted the computer and had a complete meltdown. It was very surprising and a little funny at the same time.
Vince is still shy around people, but is doing much better. I think with all of the positive gatherings this summer it has helped him a lot.
Well, that is a lot of info for one day, I will continue at another time.
Love,
Nick, Andrea, and Vince
In May Vince's Neurologist decided to take him off of phenobarb because he had not had a seizure since right after his first shunt surgery, his EEG came back normal, and the blood that was in his brain looks like it has dissolved. We did it very slowly. He was on 6 mL a day and we took 1 mL away each week, so it took 5 weeks. We did not notice anything that different with him at first but as we got lower and lower we started to notice that he was waking up screaming and after a couple of doctors appointments it was decided that he was going though withdrawals. I don't think either of us realized how strong the stuff really was. We had been told by a few people that sometimes when kids come off of the medicine they can do new things and Vince happened to be one of those. Two days after he was off of it he started to stand. At first it was very short but as the summer has gone on he has gotten stronger and stronger and now can do it for a couple of minutes at a time. He loves it to, he gets the biggest smile and is so excited when we stand. We do it a lot during the day and he even points to the couch to stand at this point.
This summer Vince has gotten a lot of teeth. He now has nine and a few more are very close. He got three of his teeth all in one day, numbers 7, 8, and 9. He had a little bit of a hard time with it but not too bad.
Vince has also started pivoting on his tummy and scooting back a little bit. Today he even started wiggle on his tummy and tried to go forward, so I think crawling is in our near future. We are very excited. It is like all of the sudden he has had this explosion of movement.
Vince also got AFO's last week. They are ankle and foot orthotics. When Vince stands he has weak ankles and needs a little help building the correct muscles. I have not taken any pictures of him in them yet, but I will soon. He does not seem to mind them and he can stand even better in them which he loves.
He is also developed quite the personality. He is so goofy and silly. He also lets you know when things are not going as he wants. We have even witnessed his first tantrum. While skyping with Nick he really wanted the computer and had a complete meltdown. It was very surprising and a little funny at the same time.
Vince is still shy around people, but is doing much better. I think with all of the positive gatherings this summer it has helped him a lot.
Well, that is a lot of info for one day, I will continue at another time.
Love,
Nick, Andrea, and Vince
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